Shifting the narrative in eating disorder recovery….

Recovery is millions of little challenges

My husband and I were hiking yesterday. We had hours of trail ahead and in between goofing around, talking about our plans for the week ahead we talked about the last year, 18months. So much has happened in this time, like for many people. We talked about people missed. Career paths, life plans and we made jokes about previous events. One event, now an often feature of his jovial mockery and light hearted goading is one of our darkest moments. Often making a situation that was once very unfunny can flip it on its head, make it more bearable. You see that a lot in the healthcare setting, jokes that someone from a non healthcare background would shudder at, is often daily practice. Why? because it makes pain and darkness more bearable and shareable.

This situation we were joking about was one of my biggest meltdowns, i’ve ever had. We were in New York exactly a year ago. I wasn’t really in recovery at this point, although I was fooling myself I was. We had been taking in sights all day, darting all over the place. I had done, what I did a lot at this time. Bargained with myself. I was “allowed” to eat whatever I wanted in the evening because I had been so active during the day. Fucked up beyond all reasoning, but this is how the eating disorder often works. Often that bargaining never actually leads to “eating whatever you want’ but we were looking for a restaurant that would suit us both. I didn’t have much input in restaurants at this point, so it was usually down to my husband to select somewhere. He talks about how incredibly stressful this was. I have no doubt, it must have felt like he was checking for poison for some medieval royalty. I would quash most selections before they had left his lips. However this particular day, it was 1 week from Christmas, we hadn’t booked. So the stress for him was ridiculous. Before he found a place, we spent an hour with us scanning menus, me rejecting. It got to the point where we retraced our steps and chose one at random that would allow us without a reservation. What came next, I don’t really remember. But he does very clearly.

It was a steak & lobster restaurant. There were no other options. There were chips and meat. That was it. After looking at the menu for all of 30 seconds, I burst into full blown tears, sobbing in a packed restaurant. I cannot describe what was going through my mind at this point. Except it was like the world had just ended. I had built the meal up, I was going to eat. Then I was presented with two things I hate, red meat and shellfish. I was petrified of chips at this point. A menu had reduced a 30 something to full blown tears. Inconsolable, snotty ugly tears. We stayed. ‘HH’ screamed that my opportunity had been ruined bla bla. I struggled through the dinner eating chips. Both of us shocked at how irrational I was. I had had moments like this at home but this was in the middle of New York. It’s obvious now, this was plain and simple fear.

But whilst cringing at this event, we chatted about the narrative now.

Eating disorders are not rational.

My world didn’t end. I didn’t die. I just looked totally mental. Now after lots and lots of little moments, challenges, meltdowns I can laugh at how absurd this moment was.

The point of this, recovery doesn’t happen over night. Recovery isn’t a case of going to bed one night and waking up recovered. It’s full of obstacles and challenges. If it’s not challenging it’s probably not recovery and doing jack shit.

Today, he asked me if I wanted an Ice cream. I heard myself say ‘no thanks’. This is a response ‘HH’ has trained to become my default. I am changing this narrative to ‘Yes, please’. Some days yes please is easier than others. But it felt uncomfortable, spontaneously having an ice cream. ‘HH’ certainly did not approve. This is another moment, challenge towards recovery. It was a world apart to the lobster joint. I felt uncomfortable, I got on with it and used to distraction techniques I’ve learnt along the way after. ( Today was repotting some of my veggies, other times breathing techniques can help) But if I’d said no thanks, it would have been a missed opportunity. Without challenges, nothing changes. In recovery discomfort is action. I don’t think I would sob in a restaurant now, unless the world genuinely was ending. I don’t bargain with ‘HH’ any more. There is no bargaining with an eating disorder, that’s an argument you won’t win unless you decide to do the complete opposite of what it’s telling you.

Useful breathing technique: https://www.cci.health.wa.gov.au/-/media/CCI/Mental-Health-Professionals/Anxiety/Anxiety—Information-Sheets/Anxiety-Information-Sheet—08—Breathing-Retraining.pdf

Wading upstream…

Recovery tight-rope ED recovery

Anorexia recovery

Recovery doesn’t have to be complicated. But I think it can be made easier.

Yesterday I got my haircut. ( I know lucky, in non lockdown) But I didn’t appreciate HOW LONG it was going to take! 4.5 hours, Two things firstly, I was able to sit an do nothing for this period. Something I have found really hard to do before, giving myself permission to be still, not fidgeting, standing, on the go or doing something productive. Because our ED’s tell us this is the worst thing a human could do, and it’s lazy. So that’s a victory that this was easy, outside of the boredom of being in the hairdressers on one of my only days off!

But…..today is harder. Why? Because I didn’t plan ahead very well. I always make an effort to eat 3 meals, and normally 2-3 snacks between, because I don’t have hunger signals yet so I eat regularly.

Second…I thought I’d be out in time for lunch yesterday. I wasn’t. I took a few crisps with me * also a win, would have never eaten anything before and I used to envy the people who would sit and snack care free. But I ended up missing lunch. Doing this feeds ‘HH’. I normally plan to have stuff with me at all times. Because missing a meal whether it’s intentional or not leads to energy deficit, which opens up pathways to old thoughts, behaviours. I cannot afford to do this. I expect with time, the odd unintentional meal miss won’t be an issue but early in recovery when there are neural pathways that are so brittle and easy to ignite it’s not a good idea.

I can feel when I haven’t eaten enough, or have allowed myself to get into energy deficit. I don’t have to be hungry to get this, it’s a feeling, and I am grateful I can now recognise it because I avoid it like the plague (or COVID to be more to relevant) But life happens. Like yesterday.

I ate as soon as I left, but I could already feel I felt out of gear. I made an extra effort to have a ‘big’ dinner and a snack before bed. I was not going to let ‘HH’ in. But just to explain how brittle recovery is in the early parts. I went to bed. I woke at 2:00 wired, with a feeling of what I guess was hunger. I felt empty. A feeling I was way to familiar with and “HH’ was there, ‘I remember this feeling it feels clean, now we need to do something, move, we don’t need to sleep’

Insomnia was a huge issue for me when I was sick, possibly the worst part, that and being bone cold all the time. Now for the most part I sleep like a baby, except if i’ve got the balance wrong. So its a warning for me. I got up and had a biscuit, because ‘HH’ thoughts were creeping in and demonising anything. So I ate my hobnob and slept through.

I knew today would likely be a bit harder, this morning questions of ‘ isn’t that too many oats, too much almond butter’ were there. So I added extra. But this is the thing, this is how we can either carry on moving forward, or a slip can happen after a simple innocent incident. Something that someone who has never had an eating disorder never has to think about, or likely understand. But for us, it’s something we cannot be complacent with it’s a tightrope. But again, the rope becomes more like a bridge than a rope with time, because now although the thoughts are louder today, I’m not acting on them. Before I would have and that’s all it would have taken to knock me off my rope. But through repeatedly getting back on the rope, it’s wider, stronger.

I know for next time, I will take my lunch, just in case. Recovery is learning, growth. Prepping like a boss for all the things that knock you off that rope is key. But getting back on the rope is vital no matter how many times you fall.

Recovery bridge Pexels.com

Resources:

  1. https://tabithafarrar.com
  2. https://edinstitute.org/blog/2013/3/31/homeodynamic-recovery-method-guidelines-overview and Gwyneth Olwyn’s book, also available at this site.

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