You are NOT your Eating Disorder…

You are not “anorexic, or insert ED

It’s never been you.

You have experienced anorexia/ bulimia, BED

It has been with you.

I recently shared a post on instagram after hearing a person with an eating disorder referred to as their disorder. “They’re bulimic”

It infuriated me. I wanted to remind that individual “they are not their eating disorder” It’s hard enough for the person to seperate themselves from this idea without it being fuelled externally. It continues the shame and stigma attached to these complex disorders.

I see this identity as the sufferer playing underdog to their eating disorder, but that does not mean they are that disorder. Most times the underdog prevails eventually.

This notion was something really important for me to hear when I first started the recovery process. From day one my therapist repeated this mantra, that I was not my eating disorder. Even when I didn’t see it or believe it.

We often attach our identities to the the eating disorder, because we have lost touch with who we truly are. That does not make the identity true or real.

Still not convinced? Picture this. You would not call a person suffering from cancer, “cancer”. The principle is the same for us experiencing an eating disorder. A person is not “cancer” anymore than a person is “anorexia, bulimia or Binge eating disorder” You have an eating disorder, it is not you.

When we embark on recovery, there maybe times where it is easier for the person to hold on to that identity whilst discovering who they are without that disorder. REGARDLESS, It is still helpful to be reminded that they are not their disorder. The disorder is acting as their safety blanket. Of course, early in recovery you will return to the safety of that blanket. But it’s a blanket, it is not part of you. Eventually you don’t need the warmth the blanket offers.

During recovery I think it’s important to explore who you want to become? Who is that identity?

Picturing who I want to be, what I want my life to look like helps me stay in recovery from anorexia. It helped me to see myself separately to the disorder I was fighting. Our values are completely incongruous. I don’t have all the answers and I’m still learning. That’s recovery and growth.

When we are amidst the throws of an eating disorder, for most of us our world becomes very small. There’s very little room for anything beyond- food, exercise and concerns with these. It’s all consuming and incredibly isolating. But- it’s not really what most people want from life.

Eating disorders restrict EVERYTHING.

Who wants to be 80 years old and look back on their life, and all it’s filled with is fear and anxiety over eating, body image, exercise. None of it matters. If we are lucky to reach an old age I want to look back on what my life was filled with, not an eating disorder. It is never too late to make this change. I don’t care if you have been the underdog to your eating disorder for 50 years, there is always hope you can recover.

My journal has been my haven for my recovery but also exploring who this recovered person is, what her goals, aspirations, values and worth are.

I promise you, my recovered self is not fixated on dietary restraint, exercise or control over shape. My recovered self is loud, doesn’t care for other people’s judgements, grateful for the process of getting from A-B and not just being at B.

That brings me onto my next point. G. R. A. T. I. T. U. D. E…

It is easy when we are having a tough time to focus on the negatives. But one thing I have learnt from recovery is there is always something to be grateful for. Even in the darkest of times when you don’t feel there is anything to be grateful about. There will be. Start small on those days. Gratitude, has really helped me ground myself and shift from the “all or nothing” thinking we so often experience with eating disorders. Black and white thinking is a prominent trait we share. I promise you, if you give gratitude practice a go, it’s very hard to stay in a negative space. I make it a daily practice now. I get it, you think I’m full of crap. I thought the person who suggested it to me was too. I thought it was hippy bull crap and I’d be making daisy chains. No.

Try this…

Everyday for a week, think of at least 2 things you are grateful for. It can be as big as you want or small as you want. Aim to build up to more than 2. Some days this will feel harder than others. It’s these days you need to find things. The way you see yourself and the world around you will improve.

You will discover your life beyond they eating disorder even if you don’t see it now.

But for those who need to hear it again… “You are not your eating disorder”

Recognising small, subtle disordered behaviours, that keep us tied to our ED…

I cooked with my husband last night, various curry dishes. This in itself for me was a milestone, I have always felt the need to completely take control in the kitchen. This was largely so my eating disorder could make shortcuts or calculate everything that was going in. It normally caused me great anxiety to deviate away from my “known” and safe meal choices. This I know is very disordered. But sometimes behaviours and thoughts are trickier to identify and hide from sight.

Once we plated the dishes we had prepared my husband just mixed all his together. Partly because it was completely underwhelming in terms of taste (which in itself would have been devastating to me not so long ago). What I mean by this, if I had allowed myself to eat and then it did not meet the standards or expectations I had for it, I would truly feel irrationally gutted.

This is disordered. I mostly felt like this when I was deep in restriction and giving myself permission to eat was near impossible. I celebrated last night that this bland food that promised more gave me no more than a mild irritation that it took so long to be boring! But there was no emotional attachment or reaction.

However the biggest thing I recognised for myself, when he mixed everything together, you could pretty much say it blew my mind. When I considered doing it, the ED voice really kicked in. And I realised the reason why it has been hard for me to do this. Eating each food item separately, especially when severely restricting gives a false sense of prolonging eating, savouring the food.

It gives a sense of enjoyment of each food, feeling more fulfilled. Which I see now is really disordered. And so, I forced myself to mix my food together. This was probably the first time I have done this in nearly two decades. It felt wrong. But enlightening.

It told me, that there are small things, that often go unnoticed and don’t get discussed in ED recovery. Things we can identify ourselves. I feel now once I notice something is disordered I have to do the opposite. Even if it’s a tiny behaviour or “quirk” that to the outside wouldn’t seem like anything. For my ED recovery it’s the difference of staying in the ED vs eventually being out, free.

I can’t tell you what your own weird tiny disordered things will be, but once you do notice something that, either going against, or stopping causes you anxiety then it’s probably disordered and you can work to change it.

Surviving Christmas diet speak in eating disorder recovery…

I love Christmas. I used to start getting excited for Christmas in September. The air smells different, the trees change and nights get shorter and staying in on a cold winter’s night with a festive movie is magical.

I still love Christmas. But Christmas can be a challenging time for many people especially people with eating disorders or recovering from eating disorders. It can invade every waking second, robbing the joy and replacing it with fear and dread. Let me be clear it is NOT just about food. Eating disorders are not just about food. They are so much more complex than this. People with eating disorders feel so much pressure, and that they cannot share this because it’s not festive or worry about disrupting the joy.

It’s a time of year where celebrations continue for most of the month (covid aside). Even in isolation the social media, the promotions during this time and messages about new beginnings in the new year etc.

Eating socially becomes more prominent. But at the same time people start discussing New Years resolutions, which inevitably involves shitty diet talk. This is so hard for people in the midst of their eating disorder or working hard to recover. Where it’s normally easy to excuse yourself from the bull shit diet speak, or judgement around food it’s harder. Often it can include spending time with people you haven’t seen for a long time (probably not so much this year) but that can be daunting and the fear of comments even when well meaning can be hard! If you are in that situation, try and be kind to yourself and see it as a positive. And the comments such as “you look well” probably are genuine and mean you look well and that you just simply no longer look like you’re dying, it’s not saying you look fat or whatever else your stupid ED tells you.

You are bombarded with conflicting messages, unhelpful quips, comments that even for those of us who are solid in recovery can be really fucking hard. The classic I will have to run this off, I’m going to be so fat, is that all you’re eating, you’re eating so much are all likely. Be ready for them and choose to stay on track. How you respond to the comment is up to you.

I have noticed myself this last couple of weeks, I’ve had to work really hard to check myself as thoughts have slowly crept in about ‘how much I should be eating, moving, what’s not “allowed”’ all bullshit and all because of the time of the year and the inevitable society pressures.

In a way it’s helpful, because although frustrating as it is to be experiencing the thoughts and anxiety return, It highlights there’s still work to be done. Clearly I still have a lot of re-wiring to do. I still clearly have an irrational fear of weight gain, which I thought I was passed. But that’s what it is, an irrational fear. It’s a phobia and it’s ingrained through the years and years of inappropriate reinforcement. It’s not surprising that events ignite these brittle pathways. I have not engaged in behaviours for close to 5 months, but it shows how easily old pathways can be re-ignited by old habits, reminders. Which is why it is so vital to continue to recognize triggers and continue the work.

For me, this means, not allowing myself to compensate for the Christmas period/ holiday (event restricting). Not entering into diet behaviour or allowing myself to be drawn into other people’s diet talk, fears and plans. Not engage in ridiculous exercise regimens because society expects it. I love you Joe Wicks BUT please stop the constant before and after pictures!

Not allowing myself to demonize food because other people are. NO FOOD is bad.

You do not have to compensate for food or inactivity ever. People’s biases around food and exercise, new years resolutions are their business and serve no place in recovery no matter how uncomfortable you feel. Be kind to yourself, ask for support and keep talking. If it helps, set boundaries before the event and if it’s too much to be in control yourself ask a support person with decisions etc.

There are tons of resources online that serve as toolkits/ survival guides for holiday.

The purpose of this blog however is not so much to share tips for how I have managed Christmas or will manage Christmas. Although I appreciated podcasts, vlogs, resources myself to help me. Rather this purpose of the blog is for people in the midst of their eating disorder, or recovering and just a simple understanding. That’s what I have found the most useful. So if you are in this situation, I see you I understand.

If you are a friend or a family member of someone with an ED, my thoughts are it’s tough on you too. Please, think about how you talk about diets, your own fear of weight gain in front of the person. Be their advocate as they may not be able to speak up so divert unhelpful conversations where you can. Maybe ditch the unhelpful comments about calories.

Ask the person (if you are in a position where you talk about the eating disorder) what the eating disorder is telling them. What they are thinking. But be warned you might not like or understand the answer. But if someone does feel comfortable to share this with you, show them support without judging them. No one expects you to get it, we don’t get it most of the time ourselves but feeling supported is huge.

Happy Christmas everyone. Stay strong

Shifting the narrative in eating disorder recovery….

Recovery is millions of little challenges

My husband and I were hiking yesterday. We had hours of trail ahead and in between goofing around, talking about our plans for the week ahead we talked about the last year, 18months. So much has happened in this time, like for many people. We talked about people missed. Career paths, life plans and we made jokes about previous events. One event, now an often feature of his jovial mockery and light hearted goading is one of our darkest moments. Often making a situation that was once very unfunny can flip it on its head, make it more bearable. You see that a lot in the healthcare setting, jokes that someone from a non healthcare background would shudder at, is often daily practice. Why? because it makes pain and darkness more bearable and shareable.

This situation we were joking about was one of my biggest meltdowns, i’ve ever had. We were in New York exactly a year ago. I wasn’t really in recovery at this point, although I was fooling myself I was. We had been taking in sights all day, darting all over the place. I had done, what I did a lot at this time. Bargained with myself. I was “allowed” to eat whatever I wanted in the evening because I had been so active during the day. Fucked up beyond all reasoning, but this is how the eating disorder often works. Often that bargaining never actually leads to “eating whatever you want’ but we were looking for a restaurant that would suit us both. I didn’t have much input in restaurants at this point, so it was usually down to my husband to select somewhere. He talks about how incredibly stressful this was. I have no doubt, it must have felt like he was checking for poison for some medieval royalty. I would quash most selections before they had left his lips. However this particular day, it was 1 week from Christmas, we hadn’t booked. So the stress for him was ridiculous. Before he found a place, we spent an hour with us scanning menus, me rejecting. It got to the point where we retraced our steps and chose one at random that would allow us without a reservation. What came next, I don’t really remember. But he does very clearly.

It was a steak & lobster restaurant. There were no other options. There were chips and meat. That was it. After looking at the menu for all of 30 seconds, I burst into full blown tears, sobbing in a packed restaurant. I cannot describe what was going through my mind at this point. Except it was like the world had just ended. I had built the meal up, I was going to eat. Then I was presented with two things I hate, red meat and shellfish. I was petrified of chips at this point. A menu had reduced a 30 something to full blown tears. Inconsolable, snotty ugly tears. We stayed. ‘HH’ screamed that my opportunity had been ruined bla bla. I struggled through the dinner eating chips. Both of us shocked at how irrational I was. I had had moments like this at home but this was in the middle of New York. It’s obvious now, this was plain and simple fear.

But whilst cringing at this event, we chatted about the narrative now.

Eating disorders are not rational.

My world didn’t end. I didn’t die. I just looked totally mental. Now after lots and lots of little moments, challenges, meltdowns I can laugh at how absurd this moment was.

The point of this, recovery doesn’t happen over night. Recovery isn’t a case of going to bed one night and waking up recovered. It’s full of obstacles and challenges. If it’s not challenging it’s probably not recovery and doing jack shit.

Today, he asked me if I wanted an Ice cream. I heard myself say ‘no thanks’. This is a response ‘HH’ has trained to become my default. I am changing this narrative to ‘Yes, please’. Some days yes please is easier than others. But it felt uncomfortable, spontaneously having an ice cream. ‘HH’ certainly did not approve. This is another moment, challenge towards recovery. It was a world apart to the lobster joint. I felt uncomfortable, I got on with it and used to distraction techniques I’ve learnt along the way after. ( Today was repotting some of my veggies, other times breathing techniques can help) But if I’d said no thanks, it would have been a missed opportunity. Without challenges, nothing changes. In recovery discomfort is action. I don’t think I would sob in a restaurant now, unless the world genuinely was ending. I don’t bargain with ‘HH’ any more. There is no bargaining with an eating disorder, that’s an argument you won’t win unless you decide to do the complete opposite of what it’s telling you.

Useful breathing technique: https://www.cci.health.wa.gov.au/-/media/CCI/Mental-Health-Professionals/Anxiety/Anxiety—Information-Sheets/Anxiety-Information-Sheet—08—Breathing-Retraining.pdf

Food is more than just food.

Best biscuit ever……

Yesterday, I had a strange realisation. It’s taken me almost 30 years to get to it, but yesterday I realised food is not just fuel. Food has no rules, no moral value and no foods can be ‘good’ or ‘bad’.

Whilst reflecting about my relationship with food, I craved a chocolate Hobnob. I heard ‘HH’ stipulate, ‘but you’re not hungry’. It was this thought, I rewound and re-framed my life-time’s thinking. Food, although important for fuel and nutrition is also part of connection and ENJOYMENT. It’s always blown my mind that people have just been able to easily eat something, just because. But yesterday, I understood food can be eaten whenever. Whether we are hungry or not. If we want to eat something we can, without judgement, without compensating, because it’s just food.

I was feeling particularly reflective yesterday, because I felt really fucking sad. The fact the I felt sad, set off a whole chain of thoughts. But what made me grateful amongst it all, the fact I could acknowledge and identify that emotion. For years I have numbed my emotions, to the extent when I started to feel again, it took me a while to recognise what I felt. That’s pretty common I think amongst us who have eating disorders. I no longer associate with the nickname I have had for years and use to value, ‘the ice queen’. This is not me now. Nor do I want it to be. The fact it became at one with my identity is quite disturbing to me now, as I am a compassionate person. But in the depths of ‘HH’s grips I was an emotional void. I’d get angry, anxious & irritable if my routine was disturbed, or challenged but these were pretty much the extent of my emotions. Instead of returning to my old behaviours yesterday, exercising to the point of exhaustion, pain or restricting to the point of false euphoria, to numb out the events. Instead I went for a walk out in nature listening to a podcast and then had a cup of tea with a Hobnob.

I felt grateful. Grateful I have reached a point of mental freedom to enable me to feel. Being numb is not living. I was grateful I could feel sadness and sit with it. Feelings pass and are not permanent. But eating disorders are. Recovery although hard, is also temporary.

The next thing I’m working hard to reach, is body neutrality. There is so much talk about ‘body positivity’ at present. I believe the premise of this is great, but I also feel it’s a double edged sword. It’s general concept to love and accept your body, sure. Promoting acceptance by society of shape, size, gender or race is the main aim. But, I feel there’s pressure with ‘body positivity’ as a concept. It over values of the body image itself, rather than appreciation of the body’s functions. For me, I don’t know if I’ll ever ‘love my body’ but I love the things my body enables me to do. I think very few people eating disorder or no eating disorder love their bodies. So for me, getting to a point where I do not care, or have any value from my appearance will be sufficient, beyond that a bonus. But I feel it’s healthier to see our bodies as a vessel, a vessel that allows us to do what we desire. It does not matter what that vessel looks like. That’s what I believe the social media message should be, that’s what body positivity should be.

Interestingly my ‘negative body image’ didn’t truly start until I was in the depths of my eating disorder. Sure there were things I had insecurities with, but I think most people on this planet do have hang ups. But I can say, the negative body image spiralled and it took so much value. This value is incongruent with my own true values, i’m not a shallow person, I couldn’t give a rat’s arse what someone looks like if they are a good human being. But the world becomes so small, consuming and out of alignment with our own beliefs. I really struggle with this aspect of my eating disorder, because on a bad ‘body image’ day it still has far too much space. Space that’s not relevant or part of me. However this is part of the divorce from diet culture and unlearning so many untruths that are so engrained in society. Most days now fortunately I am neutral towards my body, but i’m not where I want to be yet. I’m not where I want the whole of society to be, where body image is as relevant as yesterday’s weather. But rejecting diet culture and accepting ourselves is a start towards remodelling society’s beliefs . Ultimately change starts with yourself.

‘Portion sizes’, re-learning to eat like a ‘normal human-being’, anorexia recovery..

Re-learning ‘normal eating’ ED Recovery

I say normal, loosely. Because the majority of the population has some form of low grade restriction going on. Whether they realize it or not, any diet behavior is restriction. This is not normal eating. But it is ‘societies normal’ This is not an option for us.

When we restrict, our body adapts, by lowering metabolism and a whole heap of other changes like disrupting hunger cues. (This is partly why diets don’t work, restriction leads to a response known as ‘hyperphagia’ (increased hunger) to counteract this unnatural behaviour. Our bodies function in equilibrium and so will adapt or correct the perceived famine. For anyone who is interested like me, in evidence or scientific explanations, the ‘Minnesota Starvation experiment, led by Ancel Keys’ is the closest we will ever get to depicting what happens to humans when starved, both physiologically and psychologically. It would never pass an ethics committee today but the evidence still stands. This was a practice changing study from the forties that still helps to shape nutritional rehabilitation. It provides explanation for experiences such as hyperphagia.

In early recovery most of us experience “extreme hunger”, hyperphagia. For me this wasn’t so much physical hunger, for the most part, but it translated more as mental hunger or feeling off. Regardless it’s still hunger, if we are obsessing about food it’s because our bodies are needing fuel. I was constantly thinking about food, when I was next going to eat, what I could eat, worrying about whether it was ok/ not enough, even dreaming about food, obsessing about food, reading recipes the list goes on. It felt relentless and really intrusive. It was hard to think about anything else. During this period, I would also find it hard to leave food on my plate, even if I felt full, I guess it was my brain freaking out, fearing that I was going to return to a state of famine again. I’d feel almost a compulsion to finish everything. I never felt satisfied early on, I would be painfully full but still thinking about food. This has gotten better with time. I don’t feel the need to finish everything in front of me. This obsession with food was different to that in the depths of my eating disorder, where I would obsess over food then. When under the grip of ‘HH’ I would control everything around it, I’d cook for others, but never eat what I’d made. I’d bake a lot at this point, now I bake if it’s someone’s birthday, I’m just not interested or obsessed like I was. This is common I think, now we have a rule in my house if I make it, I eat it. Some days, if I haven’t eaten quite enough, I find my extreme hunger can return the next day, but this is getting less and less.

This is terrifying when it first happens. If it is happening to you, or someone you know, extreme hunger is normal, it’s a healthy response to energy deficit and reintroducing nutrition. It showed up for me months later in recovery, after I got back on track from a relapse. I didn’t experience it prior. Bingeing is normal in this setting. It’s distressing, it feels it’s going against everything the eating disorder believes. But the only way I found it improved was to listen and respond to it. Restriction remains the enemy for this.

Some-thing I still find difficult, is what’s normal. I also think, there probably isn’t actually a normal, because what’s normal for one person is not for another. However serving sizes is a tricky one, I can under-eat some times because I have done so for so long and my perception of what a ‘normal portion’ is warped.

I have found asking for help with this, although humiliating as an adult and at time unbearably uncomfortable, I often run my lunches past my husband and if he tells me it’s not enough, I don’t argue, I add more. I am trying to re-learn normal eating.

Another thing that helped me, although at the time I hated it and argued until I was blue in the face was relinquishing control around food. By this I mean, I was lucky my partner took complete control of what I ate, when I could not make healthy decisions geared towards recovery without ‘HH’ sabotaging. I was not allowed to cook, prepare meals, or enter the kitchen when meals were being prepared. It was one of the most humiliating experiences of my life and there were times when I would argue, shout, cry, throw, he would force me to eat what was in front of me. I was like a child. But worse, I was an adult having a meltdown. But this role was necessary for a short time, because if left alone, I would skip ingredients, make smaller meals, substitute ingredients ‘for healthier’ alternatives etc.

But it was important for me to regain independence quickly (for me and my partner) and the only way I could was to suck it up.

I cannot express the grattitude I have for my partner, I think people who support a person through eating disorder recovery are saints, they see the worst side of a person imaginable, because a caged animal will always lash out. I have apologised more times than I wish I’d ever have to in a life time. I think this is where it’s useful to seperate the person from their eating disorder. We are not our eating disorders, and the non-negotiations are with the eating disorder, not the person being over shadowed by it. This does not give a free pass to be a dick, it’s just to help understand why you have to keep fighting for recovery. Thankfully this wasn’t needed for long.

For a short while, I followed the principles from Gwyneth Olwyns, homeodynamic recovery. I like evidence and this is evidence based. I will link this below. I do not count calories and find doing so to be detrimental, however this principle sets minimums and it helped me for a short period when trying to become independent again.

One thing I’ve accepted is, comparing what we need to eat in recovery to someone who has not just waged war on there body is never going to be helpful. We need more than most people to heal. Healing doesn’t end at ‘weight restoration’, we still have a nutritional rehabilitation, inner repair, mental healing beyond this. Who knows how long this will take. This, Is hard for someone with a restrictive eating disorder, but I believe it’s true and giving yourself permission to eat whatever, whenever and often ‘more’ than people around you is an important step. Letting go of the judgment. I’ve only recently gotten to this point, I used to find it really really hard to eat in front of, or with others. That’s isolating and something a lot of us have to overcome. So ignoring comments about food is important, hard but totally achievable.

1. The Minnesota Starvation experiment: https://archive.wphna.org/wp-content/uploads/2016/01/2005-Mad-Science-Museum-Ancel-Keys-Starvation.pdf

2. Gwyneth Olwyn, Homeodynamic Recovery Method: https://edinstitute.org/blog/2013/3/31/homeodynamic-recovery-method-guidelines-overview

Navigating recovery…recovery beyond Eating disorder “treatment”

Navigating anorexia recovery

I believe there are many milestones in eating disorder recovery. For starters the first day of entering recovery, this is always going to be the biggest. Monumental. Then after that there are thousands of milestones (some more like marathon check-points). Like the first time we conquer a fear food, and then reach the check point of there not being fear foods. So many. Getting your first period (if you lost it/never had), then its recurrence becoming so normal and boring and moaning about it like the general population. But what about when ‘our formal support’ becomes less required?

For those of us fortunate enough to have quidance, follow a treatment plan or having a coach etc, maybe it helps path the way. But, regardless for the most part, your recovery belongs to you. Own it!

I graduated from “regular recovery support” today. Feel like I have my big girl pants (pun very much intended). I have completed CBT-E, MANTRA and have now reached a point with my therapist (OT) to move to “check-ins” rather than scheduled, regular sessions or following some kind of plan.

I know for some people navigating the world beyond regular support, is scary and daunting. I get it, it means YOU are accountable for the ongoing recovery process. But that’s pretty cool right? You have gotten far enough into recovery to be able to make healthy decisions for your recovery. You’re moving towards full recovery and this is another check-point smashed!! That’s the way I’m viewing it. Part of recovery is learning to “cope” in an informal way, that’s life.

Just because my ‘regular’ sessions are finished does not mean I can’t continue growing my support network or learning. One of the things I’ve recently found to be instrumental to my mental shift is connecting with others who have had similar struggles, are struggling or recovered. There is tons of support, whether it’s real connection, following people’s blogs, podcasts or joining a support group, they all help to validate how we feel and strengthen our healthy self. So I’m not nervous about not having regular appointments. I’m proud I’ve gotten here. I’m grateful. If I can get here, I believe anyone can, because I never believed it at the start.

However, I am anxious regarding the next challenge in my life. Something I think for anyone who hasn’t had an eating disorder finds challenging anyway. That’s getting pregnant, becoming a parent. This is another area I think in medicine that doesn’t get spoken about or shared much. What happens when someone in recovery gets pregnant? Is it wise? Should O&G teams be aware? Do they ask or look for history of eating disorders?

I wanted to wait until I was solid into my recovery and even still I worry. I worry if the child will be small, pre-term, miscarry. Will I stay on track?

For my partner and me, having a family has been something we have always wanted. For reasons not related to my eating disorder, fertility is a difficult issue which I won’t go in to.

We are about to embark on IVF. This is something I haven’t entered into lightly, I’m all too aware of what’s required in the IVF process, the follicle stimulation, multiple hormones. This I’m sure is hard in a normal setting, but for those of us with significant body image issues to begin with, these issues need to be factored into planning. Hopefully help prepare the person for the changes and enable them to remain accountable. Support, hopefully can help to prevent slips.

Next issue, if we are fortunate enough to get pregnant… avoiding energy deficit. Some people experience nausea (both during fertility treatment and then in pregnancy). Hyperemesis gravidarum (aka morning sickness) this is not a good situation for someone with a restrictive eating disorder. Breast feeding post-partum.

Our bodies change throughout pregnancy. This is a fact. Something I am trying hard to prepare for. I feel going through the weight-restoration phase of recovery helps this, perhaps. My body has changed beyond any prior recognition and that’s ok, and I don’t even have a baby to care for and love. Or to explain my pregnant looking belly, aka recovery belly. I like to think that having a child will mean that none of the ‘HH’ thoughts will matter, because that child will be the most important, most amazing achievement I will ever have. But I wanted to share this because people with eating disorders go through pregnancy. It never gets spoken about and I don’t know whether we look for it in medicine. I think people could have help and support. I expect there are many people with eating disorders too afraid to share their struggle with the medical team, for fear of judgement, lack of understanding. What will I do?

Not really sure what the point of this post is, other than I’m happy to be here. I hope if you’re reading this and perhaps your treatment has just ended and you’re freaking out, or you’re starting recovery alone or with help, you can just know that there’s support available. Support doesn’t have to be formal or structured and remember celebrate the milestones. Navigating this is like an ultra-marathon but with no clear finish line.

Some online support groups and resources….

1. Beat eating disorders UK: https://www.google.co.nz/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjxuaHD3a7tAhX2yDgGHUGiCXcQFjAAegQIAxAD&url=https%3A%2F%2Fwww.beateatingdisorders.org.uk%2Fsupport-services%2Fonline-groups&usg=AOvVaw2LpFetlZFjVyKJ6Sg1WWaX

2. Recovery warriors (Australia):eatingdisordersqueensland.org.au

3. Various options US: https://centerfordiscovery.com/groups/

4. EDANZ: New Zealand. Various resources. https://www.ed.org.nz/parent-carer-support-groups

SHOULD, is not a nice word..

Photo by Noelle Otto on Pexels.com

Should has no place in most daily language, but especially not in eating disorder recovery

Should implies rules, an obligation. That word is the reason I’m sat on my ass writing this. I was looking forward to going for a run, or joining my husband at boxfit tonight. However throughout the day at work I started to feel tired and that what I probably needed was to chill out with the cat.

Then that sneaky SHOULD word crept into the foreground. I heard my thoughts say “you should go tonight, you’ve not done anything all week”

That was the point I decided I will not exercise today. Exercise should be a priveledge/ pleasure, not a punishment.

This “SHOULD” demand was from my eating disorder, “HH” thinks I should exercise today, but that’s the very reason why not. A few months ago, I would have acted on this demand, the next day I would find it harder to eat or I’d feel more anxious about what I was eating.

Now I move my body because I want to, because it feels good, not because I feel I have to. The discomfort I used to feel if I missed a day of exercise was insurmountable before. I have to really listen to where the intent is from, whether it’s my voice, or ’HH’s.

I’m feeling proud, I can sit here and write this, instead of dragging my butt out to torture myself without enjoyment. Because I know when I truly want to move/ exercise it’s for me and not for the service of ‘HH’.

I have been a runner all my life. One of my favourite things even a a tiny child, before the days of my eating disorder was to go outside in the rain. As I got a bit older, if my athletics session was a wet session it was like Christmas for me! I loved the feel of the rain and being hot and the smell of it on the track or grass. Then ’HH’ showed up some years later. And my running, exercise was no longer for me, for the fun. It was all about targets, shifting goal posts that I would never be satisfied with.

It would be like the world ended if I had to miss a day, or I’d exercise when I was injured, sick and obviously that’s not fun. I’ve had to work really hard in my recovery to re-kindle my healthy relationship with movement, channeling that child who loved running in the rain and not the crazy person running in gale force winds/ all weathers all hours.

I took a period of abstinence, but not an extended period. I had a good support to help me workout where the intent was from. Some days I had meltdowns when I knew it wasn’t my healthy self and had to abstain. But doing that has got me here. If it feels wrong it is wrong. Exercise/movement is never meant to feel shameful, guilt driven (pre or post), like a chore. It’s a pleasure/ priveledge. Today was a day I know it was not for me, rather for ‘HH’. One day by continuing to listen to my healthy voice over and over, ‘HH’ won’t suggest I move when I don’t want to. The voice will be gone.

Challenge, Practice, Repeat…..Recover I hope.

Today was definitely helped by ‘Recovery Warriors” resources. Check out The Recovery Warriors app, website. They are currently holding a ‘holiday special” with lots of useful resources and videos etc. https://www.truewarrior.me/holiday-support

https://www.instagram.com/recovrywarriors/

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Re-reading old journal entries, anorexia recovery. What language does your ED voice use?

Reframe negative eating disorder thoughts

I’ve been journaling for a long time. I was re-reading an old journal, one I started in early recovery. I found there was a theme to the language I used to describe how I was feeling, or when journalling about behaviours.

It was all self critical. Extremely negative.

Common words I used: ASHAMED, DISGUSTED, LONELY, ANGRY, FAT. This was even when I’d documented small positive steps to change.

“I feel ashamed, I want to crawl out of my skin, I feel trapped, consumed & powerless. I’m disgusted I’ve allowed myself to get into this predicament. I don’t feel I deserve the help. It’s a spell I cannot break no matter how hard I try I’m stuck”

This was an entry I made a few weeks into recovery.

Comparing this to more recent entries, there’s none of the negative language. It’s incredible how consuming our eating disorders are, they overshadow us, they thrive on secrecy and feed the feelings of isolation and shame grows and grows.

Now that I’m much further into recovery, I can seperate this unkind voice from my own, kinder, compassionate in built healthy self voice. I do not allow myself to use language such as ashamed, disgusted, instead I reframe them and ask myself what I’m needing. Why the ‘HH’ voice is spouting these terms. If I have a thought that sounds hypercritical I know it’s coming from ‘HH’ and not me, and serves no purpose in driving my recovery.

Self compassion is difficult in early recovery because we are listening to the negative thoughts. But as we grow stronger in recovery it’s easier to be kinder to ourselves. Something we have to re-learn to do. After being the opposite for so long. It feels uncomfortable. But anything in recovery that’s uncomfortable is good.

I found it hard to do NOTHING. Or pause have a cup of tea when I felt tired, or allow myself to feel emotions. But with time, one of my favourite pass times is to sit and literally do nothing with a cup of tea ( and most often a chocolate hobnob) Yes I am English and do believe this solves everything. I never thought that weekend early in recovery I would be able to to do that. I thought ‘HH’ would berate me for sitting for a second. Sure, there are days where I do hear the negative utterances. But the difference is now I don’t turn against myself, I don’t tell myself I’m ashamed of myself, not deserving etc. I tell myself I am worthy, I can live however I want and I don’t have to listen to the thoughts. I am not those thoughts. What thoughts do you need to re-frame?

Reflecting on Christmases past, present and Christmas future in anorexia recovery

Rockerfeller tree. ED freedom

This time last year, I was getting both excited and off the chart anxious about surprising my family in the UK for Christmas, with a holiday on the way via New York.

So much has happened over the past 12 months. We couldn’t go and do this now even if we wanted to. COVID-19 has changed everything for everyone.

We were lucky we could make this trip last year. However I think we become increasingly reflective in our recovery. We have to I believe, to make sure we don’t become complacent and let the foot slip off the gas of progress and allow ourselves to slip backwards. SO naturally this means we reflect on where things lie. I have been thinking about last year’s trip a lot these past few weeks, partly because my family bring it up at every zoom chat and partly because we are making plans for this Christmas.

I can see how far I have come during this time. I felt more dread and fear around the whole trip than I did excitement. How fucked up is that?! I have always loved Christmas and a massive dream was to visit New York at Christmas time. My family Christmases have always been epic and I hadn’t spent Christmas with my family for 8 years so it was going to be special.

Uptight and not present…

Seeing the Rockerfeller tree, snow in Central Park, Macy’s displays was magical. But something still felt missing. ME. I wasn’t really present. It was like I was observing someone else experiencing what I’d always dreamed of. I sat feeling the coldest I had ever felt at a Soccer game, worrying about what we’d eat, how I’d compensate. Fixating on what my families reactions would be having not seen me for ages. Worrying about the Christmas dinners, socials it went on and on.

Then the Christmas itself- I felt numb and empty and so sad. It was not the reunion, surprise I envisioned. I was stressed the whole time, controlling everything. I wanted nothing more than to make last Christmas special, happy. But I hadn’t really committed to recovery at this point, so I had set myself up for a difficult time. Which was unnecessary.

Reflecting on progress…Now fast forward 12 months- I don’t act on ED behaviours, we are spending Xmas with friends this year. I have worked hard to be here, I have so much more freedom with each day. I’m not worrying about this Christmas, I’m looking forward to it. Looking forward to being present, being relaxed and not a controlling freak who has to micromanage everything. But this brings me sadness too. I cannot share this with my family. I cannot show them how things have changed. I hate that, the memory that should have been really special I allowed my ED, yet again to dominate, dictate and taint.

This brings me on to my next point, I know in order to get here, to keep moving forward so that I will be able to share happy holidays with my family again, I have to make a conceited effort every day to make positive steps. If you had have asked me 12 months ago, what does recovery mean, I didn’t really have a clue. I remember my therapist asked me to write down what recovery meant. However, I think at the beginning of recovery we don’t know because we are still overshadowed by our ED personality. Not so much our healthy self. I think it’s important to think about this early on, but I’m not surprised my list is different now. For starters 1 thing that is on my list of full recovery means, being able to spend time with family without any ED anxiety, complete freedom. Being able to travel without any compensation, anxiety about eating a different routine. Not being bothered by other peoples comments pertaining to my food, appearance, diets bla bla. So many more.

But in the early days it was two dimensional and clearly written by “HH”: I.e I don’t want to be cold, develop healthy relationship with exercise etc.

I think we grow in every sense as we recover. I have a far better understanding of who I am now. So in short reflection helps us to continue forward.

These would have given me so much anxiety a year ago. Now they’re just yum.

Clothes shopping in eating disorder recovery…

Phases of clothes shopping through recovery is Like “the origins of man” demonstrated by this spongebob gif!

I went clothes shopping last week. No one tells you how hard this experience is in recovery.

I decided to charity shop my “skinny” clothes. I will never need them again. It’s almost like a grieving process. I never liked how I looked at my lowest weight. I was self conscious. But buying small clothes was something my ED used as targets. Although I never felt better when I met them. I actually felt worse and worse, especially when nothing actually fit. When I started gaining weight, “HH” freaked out. Suddenly nothing fit and I felt self conscious all over again.

EDs will try and make you hold on to old behaviors or reminders of it. For me it was keeping these clothes “just in case” but they were holding me back. How can you recover with the thought you might one day fit in the clothes that fit when you are nowhere near your natural body shape or size. You can’t stay there. Not healthily anyway.

Buying clothes throughout the “weight restoration phase” is traumatic. I would recommend if you’re going through it, you don’t do it alone. It’s triggering no matter how far in you are or how committed. I would say this corresponds to the third picture in the gif. You are in no mans land. You’re not in the emaciated shell, you have fat in weird places so it’s hard to find things that fit and feel comfortable.

I went with a friend I could trust and my husband. I asked them to ask me questions like, how I felt in the clothes rather than making comments about appearance or fit. I looked for clothes I’d feel comfortable in at this stage in my recovery where my weight isn’t evenly distributed. Clothes that would accentuate other features that I’m less insecure with. For me this was flowy dresses. I have spent a long time in clothes hiding my weight for the other reason. I don’t want to hide my shape at all now, but I do want to feel comfortable. ‘HH’ longs for the old clothes but healthy me sees it a triumph of how far I’ve come.

You don’t have to like your body, I have become relatively neutral towards it. However uneven distribution, clothes shopping with size tags, mirrors is not fun. I also only bought a few things I really needed rather than a whole new wardrobe.

I didn’t do it all at once and checked in regularly. I talked through my HH thoughts with my psychologist.

Last week I went shopping on my own. It wasn’t that hard. It doesn’t need to be hard. Plan what you need, check in with your support and look after yourself.

Reckon this stage 4th sponge bob on the gif. Powering through, accepting the changes. Grateful for what you can do in your body and with your recovered body. Don’t think it’s necessary to love your body but if you do that’s a win and definitely the last sponge bob on the gif.

When will I be done?! Anorexia recovery

If you’ve read my “About page” you know how my eating disorder started.

Let’s get real about some things I wish I’d known when I started recovery. I hope being for-warned is forearmed.

When I finally sought help, I couldn’t bring myself to acknowledge or repeat the diagnosis I was given Anorexia nervosa, restrictive type.
My therapist was patient, despite my denial. She normalised the name, she used the term anorexia as if it was as routine to her as me diagnosing my patients with asthma, diabetes- no judgement. And really why should it be any different. But still, It felt dirty and shameful, I know now this was the ED talking. The ED does that, makes you think it’s your fault that your eating disorder does not deserve the same care or compassion any other diagnosis would. It’s a choice right? You can stop anytime. If you could- it’s not an eating disorder, eating disorders lull you into a false state of security and control. You think you are in control. But when asked to stop, why can’t you? Because you are unwell, you are not in control, it’s not your fault and it’s not a choice. Recovery is a choice. It is the best choice you will ever make.

After I was officially diagnosed with anorexia, orthorexia, perfectionism and over exercising my first question was; if what you say is true, when will I be done?

SO WHEN WILL I BE DONE?

This is a common question I’ve come to learn many of us ask. You will be done when you are done. Some people’s recovery takes months, some much longer, years. BUT I think the most important take home from this is, this is your journey, no one can tell you “when you’ll be done”

“your worst day in recovery is never as bad as your worst day in the ED” .

If I think I’m having a bad day, be it loud “HH” thoughts, criticism or self image, I remind myself of how far I’ve come and repeat this phrase. Thankfully the “HH” thoughts are now just a mere fleeting whisper in the wind.

Who knows how much healing you have to do, physically & mentally. The years, months of damage you’ve done by going into war with your body. But one thing is true…each step towards recovery gets easier, each step outside of the grips of your ED. Each positive step is a little bit further than the day before. I heard this phrase early in my recovery and I think there is nothing more true:

The next thing that I wish I knew when I first started recovery…

RECOVERY IS NOT LINEAR, it is NOT PERFECT

Since then I’ve had some pretty big lapses and one full relapse. But I learnt from them. I feel stronger for them.

Slips happen. It’s how you get over them that counts.

3. Recovery is hard.

There are many things we are told about when starting recovery, looking out for signs of refeeding syndrome ( metabolic disruption when nutrition is reinstated, can be life-threatening), but no one tells you: Healing is painful. It will always get worse before it gets better. But it does get better. Stick with it.

The oedema, the irratic bowels, bloating, nausea, fluid retention, acne, night sweats, second puberty, growing pains, awakening of your numbed emotions ( often leading to a clusterfuck of emotions all at once without warning), the changing body shape, uneven weight distribution. I will write a seperate post on this. I think this is a blog in itself. It takes strength to recover, it is easy to continue in what comes easily and takes a lot of unlearning of many beliefs and behaviours. It’s exhausting. BUT IT GETS better. It’s also not complicated. Food is medicine. Resting is healing. These are just a few things I wish I’d known early on in the recovery process. There’s many more thing’s iv’e learnt along the way that have been helpful, some not so much. I intend to share these on this blog, hopefully by sharing my experience you may find something to help you in your recovery.

Sharing is promoting awareness and I hope changing the stigma.

Unrestricted, unfiltered

Chances are if you’ve stumbled upon this page, you’re like me. Searching for answers, help, validation, recovery from an unhealthy relationship with food, body image. Other wise you would not be here. Maybe you still tell yourself , you’re fine and don’t have a problem, but looking for recovery blogs/ sites is not normal. Or, perhaps you know you have a problem with food, exercise, restriction, body image and you want to RECOVER.

I have been there, in both camps. I am in recovery from a restrictive eating disorder. I developed an unhealthy relationship with food, exercise and my body when I was 15. This “hitchhiker” took the driving seat of my life until I entered my recovery journey at 32. I am not fully recovered but I consider myself well on the way, 1 year in. I believe full recovery exists and is possible for all. I intend to use lessons learnt to Quash the stigma of eating disorders and document things I wish I’d known.

So now we’ve got the background, if you’re thinking about recovery, in recovery, want to help someone recover or just curious about Eating disorders welcome to QUASH the STIGMA NOT FAT!